Genea Biocells attends the Cure CMD meeting in Washington D.C.
Cure CMD held a scientific and family conference in Washington, D.C. from July 7th to the 9th. The meeting brought over 340 scientists, clinicians, affected individuals, their families and caregivers, as well as other industry stakeholders, together for the first time since 2013. Cure CMD is a non-profit organization founded in 2008 by three parents whose children were affected by Congenital Muscular Dystrophy. To date, the foundation has made significant impact in the field by promoting and supporting research and diagnostics, coordinating patient participations and raising awareness for the various disease indications that constitute congenital muscular dystrophies.
The meeting opened with a one-day scientific conference attended by clinicians and scientists working on various forms of CMD. Dr. Carsten Bonnemann, a leading CMD clinician at the NIH, provided a comprehensive overview of the various forms of CMD, their manifestation and diagnostic challenges. Other researchers presented advances and strategies to improve diagnostics and panel discussions updated attendees on new research advances and resources to help accelerate the path to the clinic.
With the arrival of patients, their families and caregivers, the meeting expanded into a friendly reunion of delegates and it was apparent that most researchers had close ties with the patient community. Mixed scientific and patient advocacy sessions continued on the subsequent days and highlighted the benefits of the close interaction between the researchers, at the forefront of scientific discoveries, and the needs of the community they are trying to serve. This close interaction and progress can only be attributed to the hard work and foresight of the Cure CMD foundation and their dedicated staff.
Jamshid Arjomand, Ph.D.
V.P. Business Development
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