The FSHD Connect conference brings together hundreds of patients, family members, researchers, physicians and health experts for a day-and-a-half of immersive learning and community building. This 2018 meeting will feature talks by thought leaders on the latest in scientific research and medical management of FSHD, living with FSHD, and raising “an army of activists.” Breakout sessions will address topics to help you cope and live better with FSHD, including exercise and physical therapy, strategies for dealing with practical and emotional transitions, caregiving, “life hacks,” and much more.
FSHD Connect Conference Schedule:
Saturday, June 9, 2018 – 1:00 PM to 5:00 PM PST
Sunday, June 10, 2018 – 8:30 AM to 5:00 PM PST
A highlight of the conference will be the CureFSHD Banquet on the evening of Saturday, June 9, to celebrate the FSHD community. We will have “Researcher Roulette,” with FSHD researchers seated at every table to encourage great conversations and new friendships
January 9, 2018